Support Groups by Diagnosis
Perhaps your doctor or the staff can refer you to a local support group for your diagnosis, since I found few among the 200 diagnoses. Below are as many as I could find, along with internet support groups. Most of the entries below are links to the associations or “home offices” for diagnoses – perhaps they to local support groups for your diagnosis. The lists below are from the internet with what I found of local support groups, internet support groups, and associations for your diagnosis which may offer more information or contacts for you.
There are many internet listings that are linked to specific medicines or clinics which I did not include. Many internet entries were religiously oriented which may have the best intentions, but may injure people with fragile brain health, so these are not included either. Please also look on your own!
If you are aware of any more face-to-face networks of support groups, please share their information on the “Contact Us” section.
As the author, I tried to find support groups for as many of the 200 diagnoses as I could. If, as a patient or caregiver, you need a support group, please contact it or them from the list. If you become aware of a group not listed in this section, please alert us through the “Contact Us” section. If more support groups are identified, they will be added to this section.
| Diagnosis Title from Wikipedia | Support Groups by Diagnosis |
|---|---|
| Abuse (or Neglect) of Adults | States differ. In Iowa, Dependent Adult Protective Services, 1-800-362-2178; In imminent danger - 911. |
| Abuse of Children (Child Abuse) | childhelpusa.org;1-800-422-4453; ChildHelp USA; National Child Abuse Hotline;Scottsdale, AZ |
| Acute Distress Disorder | , 515-292-9400, NAMI of Central Iowa; www.nami.org,National Alliance for Mental Illness, |
| Adjustment Disorder | SAMSHA National Helpline-1-800-662-4357 (US Govt-Substance Abuse and Mental Health Services Hotline) |
| Adjustment-Like Disorders | adaa.org/find-help/supportADAA-Anxiety & Depression Association of America |
| Agoraphobia (Fear of outdoors and crowds) | None found. |
| Akathesia (Mediction-Induced Restlessness) | None found |
| Alcoholism | Alcoholics Anonymous-aa.org |
| Alcohol Withdrawal | Alcoholics Anonymous-aa.org |
| Alzheimer's Disesase | Alzheimer's Association 1-800-272-3900 |
| Amphetamine Dependence | Teens-drugfree.org (New York-Online)"Partnership to End Addiction" Says free/non-profit. 212-841-5200 |
| Antidepressant Discontinuation Syndrome | None found |
| Anorexia Nervosa | allianceforeatingdisorders.com, Claims Free; On-line; 8 states have groups which may return post-COVID. |
| Antisocial Personality Disorder | myteam.org/antisocial-personality-disorder (Cost-Unknown) |
| Anxiety Disorder | adaa.org/supportgroups' Anxiety & Depression Association of America, online (Cost Unknown) |
| Asperger's Syndrome | everydayhealth.com Global&RegionalAsperger'sSyndromePartnership(Claims "Affordable"??) |
| Attention Deficit Hyperactivity Disorder | add.org-AttentionDeficitDisorderAssociation-Various services/cost-unknown |
| Attenuated Psychosis Syndrome | None found. |
| Autism Spectrum Disorder | autismspeaks.org (Cost-Unknown) |
| Avoidant Personality Disorder | avoidantpersonality.com is a website dedicated to members. Appears primarily to sell self-help books. |
| Avoidant & Restrictive Food Intake | balancedtx.com, Based in New York City, this claims to be a free virtual group, but prior sign-up is required. |
| Binge Eating Disorder | bingeeatinghope.com, free-online |
| Bipolar I Disorder | Online and local; dbsalliance.org; Depression and Bipolar Support Alliance |
| Bipolar II Disorder | Online and local; dbsalliance.org; Depression and Bipolar Support Alliance |
| Body Dysmorphic Disorder | Online:bddfoundation.org:Body Dysmorphic Disorder Foundation |
| Borderline Intellectual Functioning | IQ is between 70 and No support groups found. |
| Borderline Personality Disorder | info@nami.org: National Alliance on Mental Illness |
| Breathing-Related Sleep Disorders | AASM-American Academy of Sleep Medicine-1-630.737.9700 sleepeducation.org/sleep disorders |
| Brief Psychotic Disorder | info@sczaction.org: Schizophrenia and Psychosis Action Alliance; 800-493-2094-Open 9-5,M-F, All time zones |
| Bulimia Nervosa | allianceforeatingdisorders.com, Claims Free; On-line; 8 states have groups which may return post-COVID. |
| Caffeine-Induced Anxiety Disorder | caffeineaddictsanonymous.com:free-online (12-Step Program-privately run) |
| Caffeine Dependence | 12-Step Program, caffeineaddictsanonymous.com (free, online, privately run) |
| Caffeine Withdrawal | SAMHSA(SubstanceAbuse&MentalHealthSericesAdministration)1-800-662-4647, US Govt; 2000+Calls/Day |
| Cannabis (Marijuana) Disorder | Marijuana-Anonymous.org/find-a-meeting/Online, Phone, or Land in 31 states in some major cities |
| Catalepsy (Muscular Rigidity and Pain) | Muscles lose voluntary motion. (May accompany Parkinson's or epilepsy.)No support group was found. |
| Catatonia (Motor Immobility) | wolterskluwer.com, publishers, offer physicians "UpToDate" monthly newsletter subscription (Cost?) |
| Catatonic Schizophrenia | info@sczaction.org:Schizophrenia & Psychosis Action Alliance800-493-2094=9-5,M-F, All Time Zones |
| Central Sleep Apnea | AASM-American Academy of Sleep Medicine-1-630.737.9700 sleepeducation.org/sleep disorders |
| Childhood Disintegrative Disorder | child-autism-parent-caf?.com is part of the autismtruths.com |
| Childhood Onset Fluency Disorder | stutteringhelp.org-onlinesupport and research-The Stuttering Foundation 901-761-0343 |
| Circadian Rhythm Sleep Disorder | circadiansleepdisorders.org (Circadian Sleep Disorders Network)Email:csd-n@csd-n.org (Dues=$30) |
| Claustrophobia | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Etime |
| Cocaine Dependence | ca.org-Cocaine Anonymous-Contact phone numbers are available in most states. |
| Cognitive Disorder | This term as treated as "pre-or-early-dementia." If this is accurate, use Alzheimer's "alz-org." |
| Communication Disorder | speechbuddy.com by the American Speech and Hearing Association provides downloads and more. |
| Conduct Disorder | facebook.com/groups/ParentsofChildrenwCD//mhanational.org(MentalHealthAmerica), Privacy/Cost???? |
| Conversion Disorder | facebook.com/groups/859712170775277-Conversion Disorder Support Group |
| Cyclothymic Disorder | dbsalliance.org-Depression and Bipolar Support Alliance, online and, in some states, group meeetings |
| Delayed Ejaculation | None found. |
| Delirium | americandeliriumsociety.orgDe/patients-families/ Explanatory materials, no support groups listed currently. |
| Delusional (Grandeur) Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Etime |
| Dementia | alz.org-Alzheimer's Association; website allows search for local associations.dependent |
| Dependent Personality Disorder | No groups found. |
| Depersonalization Disorder | www.meetup.com; Online; based in Chicago-Cost Unknown |
| Depression | dbsalliance.org: Depression and BiPolar Support Alliance, Their website has a zip-code-search function. |
| Depressive Personality Disorder | dbsalliance.org: Depression and BiPolar Support Alliance, Their website has a zip-code-search function. |
| Demotillomania-Excoriation Disorder | Trichotillomania at supportgroups.com; +sgsupportgroups; Cost Unknown; 800-910-6974 |
| Developmental Coordination Disorder | dyspraxia.org; Dyspraxia Foundation-Cost Unknown 847-947-2772, (M-F, 9-5 Central Time) |
| Disinhibited Social Engagement Disorder | No free support services found. |
| Disorder of Written Expression | Excellent Schools may be best. No Support Groups found. |
| Dyspareunia | vaginismusmd.com found from 2012; Organized in Calgary, Alberta and New York; May have expanded. |
| Disruptive Impulsive Control & Conduct | None found. |
| Disruptive Mood Dysregulation Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Dissociative Amnesia | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Dissociative (Split) Identity Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Down Syndrome | ndss.org-National Down Syndrome Society-Under Resources,. On their website/ "Local Support" for groups. |
| Dyscalculia | dyscalculia-blog.com is owned by Calcularis, which builds and sells software for dyscalculia:cost-unknown |
| Dyslexia | dyslexiahelp.umich.edu: not a group itself, but lists several resources which may include support groups. |
| Dystonia-Medication-Induced | None found. |
| Elimination Disorder (Age 4 and beyond) | None found. |
| Encopresis (Bowel incontinence past age 4) | None found. |
| Enuresis (Urinary incontinence past age 4) | None found. |
| Erectile Disorder | Only groups for sending posts online found. |
| Excoriation Disorder | No private, free groups found. |
| Exhibitionism Psychosexual Disorder | networktherapy.com: Cost Unknown |
| Expressive Language Disorder | asha.org: American Speech and Hearing Association: Therapy does cost. |
| Factitious Disorder | No groups found. |
| Female Orgasmic Disorder | None found. |
| Female Sexual-Arousal Interest Disorder | stretchforwomen.org; Women-Only Organization. Cost-unknown |
| Fetishic Disorder | None found. |
| Frontotemporal Cognitive Disorder | The Association for Frontotemporal Degeneration; 1-866-507-7222; info@theaftd.com; (Early Dementia?) |
| Frotteuristic Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Gambling Disorder | smartrecovery.org:Cost Unknown, Originally from grants; gamblers anonymous.org |
| Gender Dysphoria | None found. |
| General Adaptation Syndrome(+6 Months) | No free, national groups found. |
| Generalized Anxiety Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Genito-Pelvic Pain Disorder | None found. |
| Hallucinations | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Etime |
| Hallucinogen Persisting Perception(Blurring)No groups found. (Visual disturbances after drug use; with medication can be less over time.) | No groups found. |
| Histrionic Personality Disorder | No groups found. |
| HIV Infection Disorder | hivaidstherapytribe.com |
| Hoarding (Compulsive) Disorder | No groups found. |
| Huntington's Disease | hdsa.org, Huntington's Disease Society of America;huntingtonassoc.com, International Huntington's Assn |
| Hyperkinesis | No groups found. |
| Hypersomnia | hypersomniaalliance.com; hypersonmiafoundation.org;678-842-3512 Based in Atlanta, Georgia |
| Hypoactive Sexual Desire Disorder | No groups found. |
| Hypocondriasis-Hypochondria | facebook.com/groups/hypchondriasupportgroup/ |
| Hypomanic Episode | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Illness Anxiety Disorder (Hypochondria) | facebook.com/groups/hypchondriasupportgroup/ |
| Impulse Control Disorder | No groups found. |
| Inhalant Use Disorder | samhsa.govSubstanceAbuseandMentalHealthServicesAdminisrationHelpline800-662-4357 |
| Insomnia | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Intellectual Development Disorder | facebook.com/groups/pacdd/ (Parents of Adults with Developmental Disabilities-Online) |
| Intermittent Explosive Disorder | No groups found. |
| Internet Gambling Disorder | (Gordon Moody) Online Support; www.gamblingtherapy.org |
| Internet Gaming Disorder | cgaa.info-ComputerGamingAddictsAnonymous(Free-Online)970-364-3497 |
| Intoxication, Substance-Induced | www.addictioncenter.com/treatment/support groups |
| Kleptomania | NationalAssociationofShopliftingPrevention;NASP@shopliftingprevention.org 631-923-2737 |
| Korsakoff's Syndrome-Alcoholic MemoryLoss | No groups found. |
| Language Disorder(Due to Brain Injury) | No groups found. |
| Learning Disabilities-Learning Disorder | understood.org(Social Communication Difficulties)516-654-7684 - Materials, no apparent meetings. |
| Lewy Bodies Disorder | lewybodydementiaassocation; lbda.org 1-800-539-9767, Atlanta, GA, National Office |
| Major Depressive Disorder | patientslikeme.com; free, learn from others. Claim to share with patients info on 2800 health conditions. |
| Major Depressive Episode | adaa.org/supportgroups' Anxiety & Depression Association of America, online (Cost Unknown) |
| Male Hypoactive Sexual Desire Disorder | No groups found. |
| Minor Depresive Disorder | adaa.org/supportgroups' Anxiety & Depression Association of America, online (Cost Unknown) |
| Medication-Induced Movement Disorders | No groups found. |
| Motor Disorders | No groups found. |
| Pathological Jealousy-Assumes unfaithful | No groups found. |
| Narcissistic Personality Disorder | enough-foundation-com; Designed for the victims of narcissists |
| Narcolepsy | narcolepsynetwork.org;Narcolepsy Network, Inc.; 401-667-2523; Cost-Unknown |
| Narcoleptic Malignant Syndrome | No groups found. |
| Neurodevelopmental Disorder | parentsanonymous.org;Parents' Anonymous; 909-621-6184, Free |
| NeurolepticMalignantSyndrome(PostDrugs) | nmsis.org; NeurolepticMalignantSyndromeInformationService,Inc., 607-674-7920 |
| Nicotine Dependence | nicotine-anonymous.org Nicotine Anonymous 877-879-6422 |
| Nicotine Withdrawal | nicotine-anonymous.org Nicotine Anonymous 877-879-6422 |
| Night Eating Syndrome | nationaleatingdisorders.org/National Eating Disorders Association/Helpline800-931-2237;Eastern Daytimes |
| Nightmare Disorder | sleepeducation.org; American Academy of Sleep Medicine; 630-737-9700 |
| Non-Rapid Eye Movement Sleep Disorder | contact@sleepfoundation.org; 1414 NE 42nd St, Suite 400' Seattle, WA 98105 |
| Non-Suicidal Self-Injury Self-Harm | No groups found. |
| Obsessive-Compulsive Disorder | iocdf.org; International OCD Foundation; A Meeting Directory is on their website. 617-973-5801 |
| Obsessive-Compulsive Personality | iocdf.org; International OCD Foundation; A Meeting Directory is on their website. 617-973-5801 |
| Oneirophrenia (Hallucinations by sleep-loss)No groups found. | No groups found. |
| Opioid Overdose | samhsa.govSubstanceAbuseandMentalHealthServicesAdminisrationHelpline800-662-4357 |
| Opioid Use Disorder | samhsa.govSubstanceAbuseandMentalHealthServicesAdminisrationHelpline800-662-4357 |
| Oppositional Defiant Disorder | No groups found. |
| Orthorexia Nervosa | eatingdisordersfoundation.org;TheEatingDisorderFoundation;303-333.3364 |
| Pain Disorder | painconnection.org; U.S. Pain Foundation, 800-910-0664; Face-to-Face in some cities; regular on-linesessions |
| Panic Disorder | mhanational.org MentalHealthAmerica;1-800-273-8255 |
| Paranoid Personality Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Paraphilic (Sex-Related) Disorders | No groups found. |
| Parasomnia(Sleep-walking, etc.) | No groups found. |
| Parkinson's Disease | parkinsons.org;Parkinsonson's Disease Foundation, 1-800-473-4636;michaeljfox.org(Online) |
| Partialism(Sexual Arousal for a body-part) | No groups found. |
| Passive-Aggressive Personality Disorder | No groups found. |
| Pathological Gambling | gamblersanyonymous.org;626-960-3500; Their website shows local meetings. |
| Pedophilia | stopitnow.org; 1-888-435-7463/1-888-PREVENT=Helpline; 413-587-3500-Non-helpline-other inquiries |
| Persistent Complex Bereavement Disorder | compassionatefriends.org>find-support;877-969-0010 |
| Persistent Depressive Disorder | feelingkindablue.org-Provident Behavioral Health-866-728-7983; cost-unknown |
| Personality Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Phencylidine-PCP Related Disorder | No groups found. |
| Phobias-Phobic Disorders | Facebook-phobiasupportgroup; Phobia Anxiety Support Group;609-713-2963 |
| Phonological (Speech Sounds) Disorders | speechpathways.net; SPEECHPATHwaysFoundation-410-386-0199 Cost-unknown |
| Pica-Eating (Non-Nutrient Foods) | neda.org;nationaleatingdisorders.org800-9311-2237 call or text; chat-room weekdays Eastern daytimes |
| Postpartum Depression | psidirectory.com;PostpartumSupportInternational503-894-9453 |
| Post Traumatic Stress Disorder | samhsa.govSubstanceAbuseandMentalHealthServicesAdminisrationHelpline800-662-4357 |
| Premature Ejaculation | No groups found. |
| Premenstrual Dysphoric Disorder | viciouscyclepmdd.com/iampd.org-No phone numbers provided. |
| Psychotic Disorder-Losing touch with reality. | sczaction.org-Schizophrenia Action Alliance-800-493-2094 |
| Pyromania | No groups found. |
| Rapid-Eye-Movement Sleep Disorder | No groups found. |
| Reactive Attachment Disorder | No groups found. |
| Reading Disorder | No groups found. |
| Relational (Problems) Disorder | No groups found. |
| REM Sleep Behavior Disorder | sleepassociation.org;AmericanSleep Association;No phone number found. |
| Restless Legs Syndrome | rls.org; Restless Legs Foundation; 512-366-9109 |
| Rumination (Food Regurgitation) Syndrome | nationaleatingdisorders.org/National Eating Disorders Association/Helpline800-931-2237;Eastern Daytimes |
| Sadistic Personality Disorder | No groups found. |
| Schizoaffective Disorder | sczaction.org-Schizophrenia Action Alliance-800-493-2094 |
| Schizoid Personality Disorder | sczaction.org-Schizophrenia Action Alliance-800-493-2094 |
| Schizophrenia | sczaction.org-Schizophrenia Action Alliance-800-493-2094 |
| Schizophreniform Disorder | sczaction.org-Schizophrenia Action Alliance-800-493-2094 |
| Schizotypal Personality Disorder | sczaction.org-Schizophrenia Action Alliance-800-493-2094 |
| Seasonal Affective Disorder:Depression | No groups found. |
| Sedatives/Hypnotics/Anxiolytis | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Selective Mutism | Youtube-SelectiveMutismAssociation-and TED Talk. |
| Separation Anxiety Disorder(Toddlers+) | No groups found. |
| Sexual Masochism | No groups found. |
| Sleep Disorder | sleepassociation.org;AmericanSleep Association;No phone number found. |
| Sleep-Related Hypoventilation | CCHS Network.org; (Congenital Central Hypovenitilation (Inadequate breathing) Syndrome |
| Social Anxiety Disorder(Fear others judging.) | No groups found. |
| Social Communication Disorder | More information at autismspeaks.org, 1-646-385-8500; Princeton, NJ. |
| Sociopathic-Antisocial Personality Disorder | No groups found. |
| Somatic Symptom Disorder(Symptoms only.)No groups found. | No groups found. |
| Specific Learning Disorders | Dyslexia provides 80-90% of patients. info@dyslexia.org; 1-410-296-0232; Baltimore, MD |
| Speech Sound Disorder | American Speech and Hearing Association; asha.org; 1-800-638-8255; 8:30-5MF-EST; Rockville, MD |
| Spouse Abuse | National Domestic Abuse Hotline;thehotline.org-Also offers chat-and text choices; 800-799-7233; Austin, TX |
| Stereotypic Movement Disorder(Repetitive) | autismspeaks.org(No contact information offered.) |
| Stimulant Intoxication | startyourrecovery.org/treatment/support groups; SAMHSA (FedGovt)Helpline: 8-800-662-4357 |
| Substance-Related Disorder | samhsa.govSubstanceAbuseandMentalHealthServicesAdminisrationHelpline800-662-4357 |
| Suicidal Behavior Disorder | "988" shortened in 2020 to be easier to remember and use; National Suicide Hotline was 800-273-8255 |
| Suicide Risk - Based on other Disorders | People may talk about killing themselves, hopelessnes, feeling trapped, no benefit but burden to others. |
| Tardive Dyskinesia-Involuntaryfacialmoves. | No groups found. |
| Tic Disorders and Tourette Syndrome | tourette.org;Tourette Association;888-486-8738 |
| Tobacco-Related Disorders | American Lung Association; info@lung.org; 1-800-586-4872; Chicago, IL |
| Transvestic Disorder-Arousedbycross-dress. | No groups found. |
| Trichotillomania-Compulsive hair-pulling. | bfrb.org;Body Focused Repetitive Disorders; 831-0457-1004 (M-F, 9-3, Standard Pacific Time) | Truman Syndrome-Schizophrenic Delusion | iowamhdsregions.org;Iowa Mental Health and Disability Services; Titles vary by state. |
| Undifferentiated Somatoform Disorder | nami.org, National Alliance on Mental Illness, Helpline-800-9506264 (M-F, 10 a.m.-8 p.m. Eastern Time) |
| Vascular Neurocognitive(Dementia)Disorder | dementiasociety.org; Dementia Society of America;1-800-336-3684; Doylestown, PA |
| Viginismus-Vaginal muscle spasms. | No groups found. |
| Voyeuristic Disorder "Peeping Tom" | No groups found. |
| Withdrawal from Sustance Disorder | samhsa.govSubstanceAbuseandMentalHealthServicesAdminisrationHelpline800-662-4357 |